Over 300 Women Share Experiences, Treatments for Painful, Common Chronic Conditions
CureTogether, a Health 2.0 Startup based in Silicon Valley, has
released the first crowdsourced books on vulvodynia 
and endometriosis:
two common, poorly understood conditions causing daily pain for
millions of women. Assembled from the input of 190 and 137 women living
with these respective conditions, “Vulvodynia Heroes” and
“Endometriosis Heroes” are the product of an ongoing online research
study at http://www.curetogether.com.
“Patients came together and decided what symptoms and treatments
they wanted to track. They went on to diligently gather detailed,
quantitative data on their bodies and experiences,” said Alexandra
Carmichael, co-Founder of CureTogether. “The hope of this book is to
spread awareness, reach out to people in pain who may not have heard of
endometriosis, and increase interest and funding for future research.”
“These heroes are pioneers not just in investigating their own
condition, but in developing self-cure practices that others can
follow.”, said Gary Wolf, Contributing Editor of Wired and Blogger at
The Quantified Self. “Many other women who are suffering will
find this very helpful and inspiring,” said Elizabeth Rummer, MSPT at
the Pelvic Health and Rehabilitation Center in San Francisco. A patient
with endometriosis added, “This is great. I am just starting to really
appreciate what awesome power CureTogether can have.”
Endometriosis is a painful chronic condition that affects 5-10% of
women, and vulvodynia affects up to 16% of women at some point in their
lives. They are two of the most active condition communities at
CureTogether, with information about symptoms, treatments, and causes
added by over 300 women. The books are available at http://www.curetogether.com/VHeroes and http://www.curetogether.com/EHeroes.
About CureTogether
CureTogether launched in 2008 to help people anonymously track and
compare health data — to better understand their bodies, make more
informed treatment decisions and contribute data to research. Starting
with 3 conditions (Migraine, Endometriosis and Vulvodynia), its members
have since expanded it to support 228 conditions.
*Please note that the information in Vulvodynia Heroes and
Endometriosis Heroes and at CureTogether.com does not constitute
medical advice.
For more information, please contact Alexandra Carmichael at 650-533-2163 or alexandra@curetogether.com